Sickle Cell Fighter: Justina Williams

Justina Williams of Raleigh, NC

At age 27, Justina Williams is living her dream. She supports sickle cell warriors across the Carolinas, by helping them work through health-related challenges. It’s work she’s been passionate about since she was a child navigating through life as a sickle cell warrior herself.

Diagnosed with sickle cell disease SS at birth, Justina was six-months old when she experienced her first sickle cell crises. She required her first emergency blood transfusion at age three. Blood transfusion is a common treatment for patients whose red blood cells, which are usually soft and round, sometimes harden and form a C-shape, like a sickle.

“Doctors said they could have lost me had I not gotten to the hospital and got that transfusion.”

That was the first of many blood transfusions to help relieve Justina of the pain she endures during a crises.

“I was one of the sickest babies at Duke University Hospital,” Justina recalls.

After that frightening incident, life got better for Justina. She remembers a childhood filled with joyful experiences. Her parents and doctors supported and encouraged her to do try things that made her happy, so she began dancing and cheerleading.

To manage her sickle cell disease today, doctors require that Justina receives monthly blood transfusions. But the blood she receives can only come from volunteer donors, and to reduce complications sickle cell patients rely on donated blood from individuals with a similar ethic background.

“For the African American community, it is very important that we do donate due to our genetic makeup. I think it’s very important that we do donate a lot of blood, during these times and in the future as well.”

To date, Justina estimates that she has received blood on more than 100 occasions.

“I’ve been doing very, very well on blood transfusions so far,” Justina says of her monthly treatments over the last year. Not only is she an advocate for sickle cell patients, but blood donors too. She continues to rally family and friends to donate blood in honor of patients who depend of lifesaving transfusions.

Want to become a Sickle Cell Fighter? Click here to find out how to help patients like Justina today!

Story by: Maya Franklin | American Red Cross